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COVID-19, School Shutdown Brings New Layer Of Challenges For Families Of Kids With Autism

A woman and two children walking with a sign for Azul Blue United By Autism.
Daniel Clark
/
The Nevada Independent
Parents and their children line up for snacks during a soccer camp event held by Azulblue at Charlie Frias Park in Las Vegas on Sunday, April 2, 2017. The organization aims to support parents with children in the autism spectrum.

Lee en español.

For children with autism, routines can be sacrosanct. 

The disruptions brought on by the pandemic are particularly acute for parents such as Olivia Espinoza, whose 15-year-old son has severe autism and is non-verbal. It’s been difficult to communicate to him why he can’t do his normal activities or leave the house.

“It’s difficult for us to know what is it that he wants, what are his concerns, the reason for his crisis, and more in these moments because he wants to go out,” said Espinoza, who started the organization AzulBlue for Spanish-speaking families of children with autism. 

Parents are also balancing health concerns and fear of contracting the virus with the fact that therapy is considered an essential service, available if families and providers are willing. Many families have waited months or years to get their children into the applied behavioral analysis (ABA) therapy, which can be life-changing but is costly and is sometimes recommended for hours every day.

There are about 8,500 children estimated to have autism within Nevada’s school system, but only several hundred get help through the Autism Treatment Assistance Program or Medicaid to afford the expensive services.

“I think right now we have to have priorities, and also there are many providers who are urging parents to bring their children to therapy and they are threatening that if they don’t come, they’ll lose their spot,” Espinoza said in a Spanish-language interview. “And I don’t think this is the time to say this to the families because of course the families are scared.”

Still, families have noticed some regression in their children as they’ve skipped the therapy. Luz Garcia noticed it in her two children, ages 9 and 10, who have autism.

“The children have more anxiety, more hyperactivity,” she said. “I have a husband who works in construction and in the afternoon he helps me and between the two of us, one of us is in charge of one, I’m in charge  of the other, and it’s easier when he comes home.”

A teacher sent home some books she can read to her children, but Garcia said it’s hard to replicate the experience, chiefly because she doesn’t speak English like the teacher does.

“Of course [they’re regressing],” she said. “In the first place, it really affects me because of the language. I don’t explain things to them like their teacher. I don’t speak English and my husband doesn’t either.”

Visit The Nevada Independent for the complete story.

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